Updates and Moving Forward

The Boys

[UPDATE] On Friday I was freaked out. Kyle was sick again and I was sick of him being sick again. With a fever that was not letting up and after a frustrating day of Kyle seeming to get worse instead of better, history told me that we had better do something. I knew it was Friday and we did not want to wait until Monday. I was not up for a Sunday ER visit. Kyle needed to be seen or at least I think he needed to be seen. I called and spoke with my very favorite nurse at my very favorite pediatrician’s office. She is well aware of Kyle and his recent health history. “Beth, you need to bring him in before the weekend starts.”

Herein lies my current frustration, “Am I doing too much or not am I not doing enough? Is my measured approach the right measured approach?” and “Should I just wait and hope that one day Kyle is better, I mean, really healthy?”

So Friday evening Dave, the boys and I headed to Salt Lake City. It was cold, snowy and wet. Once in the SLC Dave dropped Kyle and I off at the pediatrician while he and Eli ran errands. When we were seen Kyle still felt super crappy and still had a fever yet his Quick Strep was negative. What does it mean? We really are not quite sure if this is just how it is going to be while Kyle’s immune system continues to heal or if there is a bigger underlying issue. And this is where my frustration lies, no one seems to be able to pinpoint anything when it comes to this whole Stevens-Johnson-Syndrome experience. When I don’t think it is a big deal, it is a big deal and when Kyle is simply sick like every other kid, I cannot distinguish if his being sick means more or is nothing. My brain hurts and I am trying to roll with it. It is my job to be responsible and I just want to know if I am doing it right. If I do not roll with it, I think I make Kyle’s life worse. I try to let nature do what nature does, yet my son continues to get sick.

The doctor says his tonsils look terrible although I know for a fact that tonsils can look terrible when you are sick and it could be nothing. And because Kyle continues to get sick and sick so often, we are now being referred to an ENT who will check out Kyle’s tonsils and an Immunologist. With prescriptions and referrals in hand I called Dave to ask him to come back and get us. Dave did not tell me that he and Eli were literally about to order some food when I called. Instead of eating, they came and picked up Kyle and I. Always worried about Kyle, Eli waited until he knew Kyle was ok to tell me how bummed he was that he and Dave had to come back to the doctor’s office right when they were just about to get something to eat. That was Eli’s gentle reminder that I always need to make sure Easy E is not forgotten too. Balance.

If and when we find out more, I will let you know. For now, we are trying for normal. I (really Dave) just the boys to swim team and tomorrow we celebrate Easy E’s birthday! Thank you for caring about our boy!

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