Fitting In

Dave, my blue hat & I
Dave, my blue hat & I

Dave and I were alone, driving along 224. As often is the case when he is driving and we are alone, his eyes were firmly planted on the road (as they should be) and I was in deep contemplation, thinking about a conversation I had with a fellow parent. A clear string of thoughts came to me and suddenly I uttered, “You know how when you were a kid and having a bad day at school and your friends were being lame, how when you told a parent or another adult that they would always say, it will different once you are [insert new life/school destination here]?”

“Different does not exactly mean better.” Dave immediately chimed in.

And me back at him, “Yes, exactly! Different does not necessarily mean better, but because we say things will be different, we imply (trick) our children into believing things will be.”

Dave wisely continued, “We only know that they will be in a new place and because they are in a new place things will change and hopefully change for the better.”

“I totally fell for it. I fell for the whole things-will-get-better-once-you-are-in-a-different-place idea. I remember my one glamorous church leader. During high school she sensed how angst-filled I was. She would always offer, ‘Oh Beth, I promise you, once you get to college you will find your people.’ As luck would have it, she was right; however, even when I tried to postpone my college graduation year after year so I could stay in my comfortable place, finding-my-people was very short lived.  In fact I think we would both say that we miss those careless, fitting-in-days of college, hanging out with our crazy-misfit friends, Sunday dinners while intellectualizing on the backyard hammock, having all the answers, loving life and knowing we had a place. Now those friends are scattered and we are here trying to help our own boys find their place. Ay-yi-yi! Good luck boys!”

Except for my occasional thought-provoked-outburst, until this moment, and because I believe Dave and I were now home, this conversation has continued in my head.

I thought I had a handle on this whole idea of fitting in, being cool and even getting through the bad days.  Dave and I have even crafted a roadmap, assuring that not only will our kids will fit in during their school years, but they will also be able to fly through those crazy teen years completely unscathed. Dave calls it the “Dungeons-and-Dragons Plan.”  We get the boys into nerdy role-playing games, sure to paint tiny figurines and they will (a.) have a group peers, and will (b.) avoid the perils of teen pregnancy, drugs and drinking.  Like Dave says, “It worked for me” and he still has those same high-quality nerdy friends today. Our Master Plan was in the bag, or, so we thought.

Then, at an unspecified place and time,  I ran into a parent [true story] and again I had to reconsider everything I think about kids and even fellow parents fitting in.  Sadly, I even had to rethink our Nerdy Master Plan. This parent openly told me about her child who for some reason is not as cool as this child used to be, which led the parent to tell me that they were bummed that their child was not part of the popular group anymore.  I was really sad when I realized what they were saying and then to my shock they continued, “Beth, I was so popular and cool when I was growing up and being cool is what I want for my kids.” Really? Stunned, I stood there for a second, quickly recovering with an, “I understand,” (well, kind of), “‘I was well liked too.” (well, kind of). I weakly responded and then reminded them, “Your child is awesome! We all have to love our kids for who they are blah, blah, blah, good feelings, lame response, blah, blah.” I am still unresolved about this conversation and honestly this conversation is one similar of many.

Once I have been thinking about the whole cool issue. I have tricked myself all these years, thinking that, except for the occasional status-conscious-jerk that being cool was a tall tale saved specifically for school age children, especially girls. I say girls because I only have boys. It is safer to feel like girls will be the only ones who deal with bullying, social status, popularity and fitting in. I am wrong. Boys get their fair share of social politics too.

“What Mythical-Unicorns-and-Rainbows-Utopia are you living in to think that being cool does not matter?” I keep asking myself that question each and every time I hear a fellow parent, peer or child worry about being cool (fitting in).  I scream when I realize that some parents are not comfortable with where their child fits in. When I hear a child say they need a certain article of clothing, toy or video game,  I can only think of myself liking to have my own casual-prana-Northface-Patagonia-mountainwear so that I blend in with all the other Parkites (Park City People).   It makes me sad when me or anyone feels like they have to do unrealistic (new car every year), unreasonable (Botox and new boobs) or unkind things (trash talk other moms, in the case of women) to fit in. And then I wonder (fill with angst) if I am hurting my boys. Do I let my own insecurities affect how I feel about them? Do I let my own self-doubt affect how they feel about themselves? Or instead, do they know that Dave and I think they are rock-star awesome and that everyday they can fill the world with their own unique awesomeness and every afternoon when they come home that they can have a happy place to be and recharge?

Kyle recently embraced and boosted his confidence with the advice I passed along to him from a good friend of ours. Our friend relayed how when he was young his friend blew him off for about a week when other, more popular kids came around. In his wisdom, our friend told his friend, “Hey look, we are either friends all of the time of none of the time.”

What I do know is that we all want to fit in. We all want to be accepted, validated and liked.  I think the better question is,  “How do we go about being happy with who we are? ” Oh, and as a parent maybe just maybe if we are ok with ourselves we can pass that along to our kids. Just a thought.

Blog Block and thank you Fr’Oprah

Once my fingers reach the keys and begin tapping away, I seem to be fine. Getting myself to my laptop, well, that is a whole different story. I can always think of anything thing to do besides write. Today I had the intention of writing once the boys were out the door. Instead,  I did the dishes, stripped the sheets, made beds, made Kyle and I a yummy strawberry banana and coconut smoothy, tried to sign the boys up for summer camps, took a shower,  dried my hair, folded some clothes, cleaned two bathroom mirrors, washed more clothes, folded even more clothes, organized some bills, wrote a birthday card, vacuumed the floor and flossed the carrot out of my teeth. Even now I keep straying from this post. At this very moment I am tempted by the little red number I see at the side of my computer screen. This little red number tells me I have new email. I cannot resist.  It is an email from Dave detailing a possible upcoming business trip to Ecuador. He tells me how awesome the trip will be and that I may be able to tag along.  I do, however, resist the urge to Google everything Ecuador. Baby steps.

Every time I walk into the office, which is the current home of my laptop, I seem to gasp, think of something else I need to do, turn, and walk away. Oddly enough, one of my very favorite things to do is write.   I love to write! Hey, just a minute, I need to go grab my tea from the kitchen. See, it is hard for me to stay focused and stay put, especially here. Be right back.

On my way to retrieve my cup of Raspberry Tea, I decide to check and see if the laundry is ready to put in the dryer. It is. On my way to the laundry room I see the kitchen phone sitting on the bedroom bench. I pick it up after putting the wash into the dryer, return the phone to its proper spot, grab my cup of tea and march myself back up the stairs, only to notice the gray sky and new snow falling “It is the middle of May for crying out loud!” At the sight of the snow I want to crawl back into bed or at least sit myself in front of the television. Alas, I will myself back into the office and yes, I am back and yes, I was not kidding. (1). I am easily distracted. (2.) It is hard for me to sit down and write.

Two nights ago, the kids were in bed. I walked into our t.v. room, Dave had a show all cued up and as I sat down, he pushed, “play.” I immediately blurted out, “Dave, Dave, can you push pause?” As he pushed pause, he simultaneously reached for his iPhone. “Get ready. This is going to be a long one,” I am sure he thought. I did not mind him typing away and moving his finger across the screen. Only occasionally did I ask him to look me in the eye. “Ok Dave, look up. Look at me. I want to make sure you hear this part. Ok?” Directly and square in the eye he met my gaze. Secretly I was grateful to see his kind and beautiful baby blues facing my direction. Somehow when Dave looks at me, I feel ok. I feel like I can conquer anything. I may even be able to conquer this whole Blogging Block. When he looks at me, I know I have his support. He loves me no matter how snow-hating-crazy I really am. He loves me even at times when he is driving down the highway and I do things like pluck his occasional stray nose hair because I cannot imagine it peeking out of his nose for just one more second. True love.

“Dave. Dave. Dave. So I was watching Oprah. You know it is her last few shows — ever.” (Truth be told, it has been a while since I have watched Oprah. Now that she is near the end of her run, I am guessing that I am not the only one taking all of her Oprah-ness in, every last second of her.)

I continue, ” I have to watch these last six shows. Well, I was watching Oprah today and she had James Frey on. Remember James Frey? He was the guy who wrote A Million Little Pieces and then there was all the mess about him lying and misrepresenting himself? Remember? First she had him on in 2005 as her book club choice. Then in 2006, Oprah had him on so she could take him to task for things like calling his book a memoir when it really wasn’t.”

“I remember.” Dave responded.

“Ok, so as I watched, I was mesmerized. James Frey owned it. Not only did James Frey own his whole book mess, but he said as bad as it was that he was also grateful. Oprah also owned her part. She still thinks she needed to take him to task, however, she was sorry that she did not show James Frey any compassion.  And as I watched them talk, as awkward as it was, I was completely moved. In some way I could totally relate to their experience.  Good television!”

“Cool.” I think Dave said or he said something to let me know he was still listening.

“I cried as I watched. I am not sure I even like how James Frey came across or Oprah, for that matter. Yet, they both completely made sense. And then somewhere in the back and forth of  their explanations and event replays, Oprah said she had been embarrassed.  Because she had taken a risk for him, she felt responsible for the outcome or for how he had misrepresented himself os something.  When he screwed up, she was embarrassed.”

[a light bulb goes on]

“See Dave, I totally get it. 2006 was the year I took a blogging break. Since then I have spent thousands of dollars on therapy. I have tried to be present for you and the boys. We built this house. We have traveled. I have grown up. Well, I hope I have grown up. You and I both know that I have really worked to move forward with my life. Blogging was not my issue. My issues came from a much more distant place. Once I started dealing with the deeper layers of my life, I was able to let go and move forward.”

(Beth Note: What I know is this. Life is a process. Before I ever started blogging and until the day I die,  I expect I will be peeling away the layers, trying to better myself. Sometimes, however, you are given a huge opportunity to peel away a bunch of layers all at once. 2006 was the year I received that gift.)

Dave looked up and smiled, “Yes.”

“Somehow, however, even though I feel like I have made peace with me and that life is a happy balance, every time I really get my blog ball rolling, I have this whole James-Frey-Oprah-in-2006 type of experience play out in my psyche.  In those times when I try to blog consistently, I start to feel like a deer in headlights filled with the crazy and turbulent feelings I felt the day I shut down my blog. In the past, when I feel those uncomfortable feelings, I knew I was not quite ready to do this full time and then I would think of something better to do, like the dishes. In this weird way, I think listening to and watching Oprah and James Frey has helped me move forward. I think I am ready to push past those uncomfortable triggers. All alone and with no one watching over me, I think I am finally ready.  I have nothing to lose.  That’s what he said. He didn’t think it could get any worse and the things that mattered were his family. I saw his eyes well up when Oprah mentioned his dying eleven day old son. I thought of Kyle. Kyle’s illness has been so much bigger. I get it.”

Dave was still with me, “Absolutely.”

“As I listened to Oprah explain herself I thought about what someone said to me when I left blogging, “Beth, you are embarrassing! You are an embarrassment!” As I listened to Oprah explain why she treated James the way she did, I remembered and felt those words, “I was an embarrassment, a huge embarrassment.” Oprah told James Frey that she was embarrassed and because she was embarrassed she had no compassion. Her Ego had been hurt. I get it. Even if it doesn’t really apply to me. I see what I did wrong, where I went wrong, and how I could have been better. I see where it started and I see that I have no control over anyone or anything besides myself.  Being called an embarrassment was the very least of my worries. Watching James Frey and Oprah work through it reminded me that I too accept that I was where I was back then and all I could do is move forward.  You and I know, that is what I did.  That is what we all did. Get it?”

“And?”

“You know what? Among many other blogging faux pas, I actually think I did do something pretty embarrassing. I also did not handle myself well when confronted. Sure, when confronted, I used the excuse that I was processing my very recent second trimester miscarriage (fair excuse, by the way), that you were not home and that I was not myself. Sure, I should have walked away before opening my mouth. And even though my emotions were in the toilet, I did not handle myself well. It really did not matter.  The damage and trail of choices had been made so long before I was confronted by anyone. And when I finally was confronted, it was pointless and unrecoverable.  As awful as that moment was, almost immediately I saw that I was being given a huge gift.  As sad as I was to shut down my blog, to walk away from friendships,  as sad as I was to lose one friend in particular, someone who had meant so much to me — someone who was so brilliant,  I was free. I was free to be myself. I was free to think of the good times.  I was free to laugh. I was free. And like James Frey, when the world explodes in front of you,  you are free to sit alone and write whatever the hell you want. I was free to move forward. I was free to focus on you, Kyle and Eli. And sometimes to be free, you just have to walk away. Sure, the broken record is that yes, I have missed blogging. I have missed all the things I lost as a result. Collateral Damage, right? Hey, I would be wiling to cut my arm off with a dull blade if it meant freedom.”

“Obviously.”

” Ok. Ok, you know that something I have been very quiet about and really do not talk about is how grateful I am for that one friend. I am grateful for this experience.  As painful as life can be, I am grateful for all the steps I have taken.”

“Yes you have.”  Dave said. Ok, Dave probably did not say that, but I want you to know that Dave stayed with me during this entire long conversation. Remember he had a show cued up. Instead, he sat there, patiently listening, waiting for me to finish.

I took a breath and continued my proclamation,  “Thank God for therapy and thank God for healing. I did move forward and I love where I am at now. Thank God I really get that it does not matter if the other people or person see or even forgive.  And as I have said many times before, I not only love, but feel blessed that I went through this crazy time and all the crazy times of my life, as uncomfortable as they were. I am always grateful for the crazy. James Frey was right. He made a mistake, faced his mistake, tried to make amends and moved forward. That is all we can do. Thank goodness I took the time to watch the show. Thank goodness for someone like Oprah. As big and powerful as she is, she also shows us that she is willing to peel the layers too.”

I finished up my long speech, and we watched our show. Today, after writing more than 2,100 words,  I feel that much closer to getting it. Thank you crazy James Frey for reminding me to believe in myself and not to be afraid to be who you are. You are so self help and I love it!

Eww and I Promise I Would Tell You

A few minutes ago I looked in the mirror and noticed to my extreme horror the dried spot of blood on my face. On the right side of my cheek, about an inch to the side and a little to the right of my lip, there it was, a giant, hideous glob of dried reddish blood. “Eww, and how did that happen?” My guesses are that either some super human soul stealthily shot me with a Fiberglass arrow, only grazing my skin or that I walked into something, acquired temporary amnesia and spontaneously began to bleed. The blood was dry which also led me to believe that it had been sitting on my face, in full view, for some time. “Gross and Damn it!”

Let’s see, in the time that the blood was most likely coagulating, I went out to lunch with Dave and did a bunch of other things. At at our local Good Karma restaurant, I sat across from my dear husband for nearly an hour eating my citrus glaze covered Chicken Kebob while Dave ate his yummy Lamb and Chicken Coconut Indian Curry. Not a word. Not one word. We talked, we smiled. I think we even held hands, and nothing. I ate a bunch of his spicy chicken curry. Nothing. Not even a slight notice of the giant splotch. When I assume my face was compromised and before we began to eat, we learned from our waitress that we actually needed the two for one coupon, instead of just telling the waitress about the ad in the paper. Dave’s office was close by so decided to we walk back and retrieve the coupon. At his office I met his new intern. In fairness to this young and fresh employee, I am guessing it would take a lot more than seeing blood on my face for him to speak up to his boss’s wife. What would he say, “Ah, um, Dave’s wife, um, your face is bleeding.” I’d think it would be a little weird too.

As Dave and I left the office, I said hello to his business partner’s mother and exchanged a smile with another woman I almost went into business with. Not a word, not a word from either one of these ladies. You would expect something from a fellow female, wouldn’t you? We made it back to the restaurant. We spoke with two waitresses. At this point the closest indication that anyone was trying to tell me that I a had a glob of dried blood on my face was the funny look I received from business partner’s mother, if it even was a funny look?

After finishing lunch and before I even arrived to pick the boys up from school I had encountered six people directly, including Dave. He and I also walked by another company’s barbecue on our way back to my car. In fairness to the barbecue folk, I am sure they would not blurt out to a complete stranger, “Hey, lady, you are bleeding,” would they?

For me the most shameful-blood-on-my-face moments would have to be all the other mothers I engaged when I picked up the boys. Today not only did I say hello to the moms in the pick-up line, I also went inside the school. How many women and children do I see daily that also saw my deranged face?

Once home, not knowing my predicament, I looked in the mirror while flossing a random piece of something or other out of my teeth. There it was, the BLOOD and that is where all my retroactive panic began. If I have blood on my face, food in my teeth or toilet paper dangling off of my feet, I would greatly appreciate the heads up. Now if you notice the gap between my teeth, I know it is there too. That, I am stuck with.

Taking Yesterday for Granted

or shall I say, “I didn’t know a good thing when I had it.”

At this spot in time I think/hope I can be more objective when I look back at online communication’s early days. I think we all can. The facts are these: I really started blogging in 2002 when everything in Internet Land was crazy, the Dot Boom had gone bust. Venture Capitalists were no longer throwing millions at fleeting thoughts.  There was no Facebook; Google was around, but only used by nerds at that point, and a Twitter was something your heart did when it was in love.

On occasion I have mentioned that my very first blog actually began in 1998. Oh wait, technically it was 1997 when I wrote my first web piece on OS News (Dave’s technology website that still exists today). See, I worked at an early-stage startup and internet is what I did. Some sort of personal website only seemed a natural fit. It was my wedding blog. Dave had this fantastic idea to put all of our wedding information and special love thoughts online. I honestly doubted if anyone besides the handful of internet junkies would actually use the site. If they did, we promised that all of the information was there and that this online information would make things easier by streamlining our wedding agenda.

Thirteen years later, I can now tell you that I was correct. A handful of people did look at our wedding blog and most of the feedback we received went something like this: [insert a Midwestern Pre-school teacher voice here] “Oh geez, that is really, um [confused pause] sweet? Aren’t you concerned that just anyone (probably a pervert) could look at your website and show up at your wedding?” Not really, and really what Dave and I thought was, “well, if some random person finds our website, then the more the merrier [even a pervert, wink, wink].”

Fast forward a few years to 2002. Once again my lovely husband had the brilliant blogging idea. We had recently purchased at VW Eurovan Camper. Dave, the boys and I were going to spend a year on the road and Dave figured a blog would be the perfect way to let our family know where we were and at least when we made our post we would also let them know that we were still alive. I like how he thinks. We hit the road and occasionally posted from exotic locals such as Calgary, Alberta, Canada and Western Nevada.

Then one day, one of the many times we were back in Utah staying in a friend’s condo, all of our stuff in storage and feeling a little displaced with two delightful small children, I started writing. I began to use my blog as more or less my daily therapist. Each new day I had somewhere to go to let it all out.

It was great. It was new. It was my everyday outlet. My only rule is that before I published anything online that my husband and technical writing editor extraodinaire was required (begged) to edit each and every post. I had pressed send on too many hastily-crafted, barely-literate emails in my time (and paid the price in embarrassment) to have my dangling modifiers hung out to dry to the world. No. I would do my best to make sure my pieces were edited in hopes of only the very few would even notice my comma splice or homonym conundrum.

With grateful links to my website and word of mouth, momentum starting building and more than just my sisters and my mother-in-law were reading my website. I really did not understand the gift I was given. I had found a sweet spot that everyone but me seemed to know was there. Self doubt in full swing, I denied the fact that I was hitting my stride at the just the right time! Instead, I let myself get spooked. I let other people’s perceptions fill my head. I am not a jealous person, for instance. However when other people told me I was jealous, I listened and worked extra hard to prove I was not jealous. No, I was just silly. Silly for letting my head get filled with such nonsense. Instead of minding my own business and focusing on the thing I love to do, which is write, I let my head get filled with gossip, harsh criticism and insecurity.

I lost my momentum, walked away and stopped believing in myself.   I did not know how good I had it and  have had to forgive the past me for not seeing the gift I had been given.

It has taken me a lifetime to discover that I need to believe in myself. Back when I was writing full time, as much as I LOVED telling my stories I do not think I ever thought or believed I deserved a space in this world, let alone the internet world.

Growing up I believed in my beautiful thin and tall sisters. When I was way to young to be listening to such music, I believed in my rock star sister, who taught me about David Bowie and Alice Cooper. I believed in my awesome brother who all the girls loved. I believed in my other brother who always had the lead in the school play. I believed in my sweet mom, who everyone loves. I believed in my dad and I do not even know him. What I do know is every time I saw him he had a fridge stocked with special drinks, like V-8, and always a brand new fantastic car. (The Firebird — yes, the one with the bird on the hood — and Porsche were my favorites. ) He did not pay much child support or have anything to do with me, but with those expensive drinks and fancy new cars he must have been doing something right. I believed in him. I really did. Everyone in my family, my very big family, was completely awesome, just not me. Seriously, that is what I believed. And somehow my beliefs followed me into adulthood. Each and every time I feel some success, I feel someone deserves it more than me. Jealous? No. I will freaking die on a sword for you so you can succeed. I will cheer you all the way to Victory! I will scream the loudest for you. It is easier. Believing in myself, well, that has been more difficult.

Stopping and catching my breath has been good. Somehow, deciding to be present for my two amazing boys and incredible husband helped me see.  Go figure.  Sure, I know I walked away from opportunity. My momentum was moving forward and going somewhere fast. I honestly do not know where blog of yesterday would have taken me. I do know it was going somewhere and I do not take that for granted.

What I have now is today. My guess is that no longer are my readers many. The few of you that have found me or remain I am grateful for. If more come my way, all the better.  Life is moving and while it moves forward my hope is that I carve out a space once again. This time, however, I promise to notice that it is there.

Snow in May May Drive ME Crazy

Seriously!

I knew when we moved up to Park City all those years ago that the winters would be long. My real estate agent warned me: “Beth, you are going to move back to Salt Lake City in no time. You hate Winter!” True, if I had a choice, a Snowy Mountain Hideaway would not be top on my list. Snowy Mountain Hideaways are good for long weekends, not for full time living. Yes, my sons have become excellent skiers and my husband is over the moon with the fact that he found a way to ski home from the ski resort. All very cool things to big and little dudes alike. Me, on the other hand, well, I think I have probably skied approximately ten times in the five years we have wintered here. I want to ski. I have earnest desires to ski. One year I broke my nose and foot and then this year I had a very sick boy. He, however, managed to ski more than me.

Honestly, and more specifically, I do not hate winter! What I hate are those months after the Sundance Film Festival ends until that time when the daffodils in my yard are in full bloom. (No, just seeing a little bud through the snow does not count.) And to show you how flexible I can be, I will happily oblige Winter until Ski Season officially ends in mid April. Talk about compromise. However, any snow that falls after April 15 can just shove itself way back high into the atmosphere.

I know my mother-in-law thinks I am crazy, and she is not the only snow-loving person who does. Every time she comes to visit she sits for hours in our living room staring out the window. “I just love looking at the snow. I do not understand why you do not like it. Anyone would be lucky to live here.” I know. I know. I am the ungrateful soul crusher who just happens to be married to your first born son, your amazing son, who built his beautiful dream home, pounding nail by nail, with his bare calloused and bloodied hands.

Her latest visit was in mid March. The moment she walked into our house the boys asked her to sit with them at the kitchen counter. “No, I am going to sit over here.” Here meaning in the breakfast nook by the big windows that look out into our backyard. “I just want to look out the window at the snow.” ( I cannot go any further without mentioning that the night before when Dave and I were talking about his lovely mother’s visit I surmised that all she would want to do is “stare out the window and look at the snow.” Guess what? She did. All I am saying is that I know my mother-in-law.) **Note: It should go without saying that I love my delightful mother-in-law and awesome-tastic husband. I just do not get their love of snow.

“My mom does not like the snow.” They boys told her, and then they left her alone to stare at our snow covered yard. I have spent years hearing how crazy I am for not liking the snow and finally made it a point to have my response ready for the snow lovers: “Mother-in-law, it is not that I do not like the snow. I do. I grew up in Minnesota. I am a hardy Midwesterner. I just do not like snow nine months out of the year. You do not live here. Your snow is melted. If I came to visit you at your 7,200 feet in elevation snow covered home, I think it would be pretty awesome too. I live here. And to have eight foot high walls of snow in mid-March is not my dream.” Ok, maybe a little overkill. I just wanted to be clear. Am I clear?

It is now May 10, 2011. Mother’s Day is gone. The snow, well, it is still here. This morning I did what I do every morning. I get up. I get the boys up. I assist where I am needed. I get breakfast on the table. Nothing fancy, some Ovaltine and Cereal. I put Eli’s snack in his backpack, slick down Kyle’s crazy fly-away sideburns and remind the boys to brush their teeth, have a moment at the back door to talk about our day and then get everyone out the door. This morning I also shut the garage door and listened to Eli’s outburst as a result of me removing my hair brush from my bathroom. “Mom, mom, I looked everywhere! I WAS NOT DONE BRUSHING MY HAIR!” Okay dokay little fellow. I gave him a comb and then he shrieked as he combed a chunk of hair out of his head. “MOM! I CAN’T!” Oh, the horrors of having Justin-Bieber-Esque hair that can never ever be referred to as “Justin Bieber Hair”.

Everyone was out the door. I stopped to catch my breath, eat my oatmeal and read the news. Then I saw them. They were tiny, so very small that maybe I would simply not notice them. “I see you! I see you tiny tiny snowflakes.” and then I went back to bed.

Please REAL Spring come! I need you. I need to see grass. I need to see bright yellow Dafodils. I do not think it is funny anymore to make predictions about how long the snow will stay. Our prediction this morning: July!

And by September it will snow again! Ay-Yi-Yi!

Stevens-Johnson Syndrome: Beginning to Process

(and there is a long way to go)

I have so much to say and I want to say it. There is just not enough information about this terrible disease. I need to share our story.

Indulgent is what I feel. My Brandi Carlisle Pandora Station is on. The song, “You belong to me,” plays in the background. I hear the words:

Oh I’ll be so alone without you
Maybe you’ll be lonesome too

Fly the ocean
In a silver plane
See the jungle
When it’s wet with rain
Just remember till
You’re home again
You belong to me.

Years ago my friend Katie died way to young of Leukemia. She was much younger than me. I often visited her in the hospital and became close to her and her family. When Kyle was in the hospital I felt Katie everywhere, especially in the hospital playroom. Right now I am in the middle of responding to an email from Katie’s mom.

As I try to respond, my throat tightens and tears fill my eyes. I feel indulgent and self-consumed as the sweet, sappy music plays. I feel weepy and breathless as my fingers click away.

I have to stop and write before this moment leaves.

. . . It was one of the many long hospital days. Gratefully, as they often did, one Kyle’s very best friends and his mother,  came to spend time with us. His best friend was still recovering from a brain injury. Kyle’s friend empathetically had this uncanny ability to comfort Kyle in ways I simply could not. My mom was at the hospital that day and we all made our way to the hospital playroom. Kyle was walking with his mobile IV station, tubes and IVs attached. As I talked to my friend, Kyle and his friend built model airplanes. As we sat, I looked around at all the sick children, some dying and some about to go home. I was completely deer-in-headlights overwhelmed. I watched Kyle and his friend, Kyle’s face so swollen from steroids, wearing a tan baseball cap. Somehow when he wore this one tan baseball cap, given to him by another friend, Kyle’s face seemed to look even more swollen, his lips more bloody and sore, his eyes more profoundly injured. He looked to me like a Cancer patient. My thoughts went right to Katie and coincidentally so did my mom’s. I remember the many times visiting Katie when she came to Minnesota for Cancer Treatment, her face swollen from steroids, her sweet and hopeful enthusiasm. I told my friend about Katie and that she had died of cancer. I choked up and forced my feelings down. I was completely caught off guard with emotion. Maybe it was because my heart was wide open. Maybe it was because there really is something beyond this life. I am not sure. What I do know is what I felt next was a gift. I felt Katie, as if she were alive and sitting right next to me, hanging out and helping me let my guard down, something that has not been easy to do.

And then today, I felt Katie as I wrote her mom. Sweet Katie is one of the many unexpected gifts in this whole crazy mess. Each and every time I have thought about her since Kyle became ill, I am completely overcome. I don’t think anyone has any idea until now that this happens. Somehow Katie has been one of the only things that can propel me passed my stoic and frightened exterior. My heart opens wide and somehow I am able to allow those raw feelings and memories of me helplessly watching Kyle suffer surface.

For months I have been scared, confused and completely out of my depth. The indicator of how serious this has all been is that I am holding my usually unguarded feelings tight and close.

Today, and thanks for me finally taking the time to respond to my email, my heart is open once again. For how long, I do not know. I will take the moment and let myself remember. And now with some distance I am beginning to look back and see how absolutely horrifying this experience was. The moments are opening up and revealing themselves to me and I am grateful. These moments have patiently waited to show themselves and I am sure they will continue to do so.

In the safety and silence of my home, I can now see Kyle attached to his mobile IV standing in the hospital hallway, wearing sunglasses and screaming, I mean screaming at the top of his lungs,

“MOM, MOM, MOM, IT HURTS SO MUCH,” followed by, “MOM YOU ARE WALKING TOO SLOW,” immediately followed by a, “I CANNOT BREATHE! MOM, DO YOU HEAR ME? I CANNOT BREATHE! MOM!”

In a state of shock I stood there, in a random hospital hallway, burned out, watching my boy, helpless, his face, his eyes, falling off from the inside, feeding tube inserted down his nose, IV attached in his arm and irritating the hell out of him. And then the gentle Med Tech touching Kyle’s arm, softly pleading,

“Kyle, Kyle you need to be quiet.” With Kyle responding even louder than before, “I CAN’T! I CAN’T! I DO NOT UNDERSTAND! HELP! HELP! HELP! HELP! MOMMMMMMM, HELP ME!”
She gently continued, “Kyle, you have to. You are scaring the other patients.”

We made our way across the floor to the hospital patio. Kyle screamed, spit and continued to flip out. We grabbed a box of Kleenex from the Coffee Cart Lady. Thank goodness for those boxes of Kleenexes. They were everywhere. He tried spitting on the floor. He spit outside. He did not stop spitting. He was mad and he spit. The blood and tissue he spit were so gross. They looked akin to Zombie-Flesh. At that moment I could not see how absolutely bad it was. I could not anticipate the months he would suffer; the months he would continue to lose massive amounts off skin tissue. I could not. What I could see. What I could see in that moment was that Kyle was out of his room. It had been almost two weeks since he had been out of his room. That walk, as brief and crazy as it was, was the first time Kyle had moved, had left his bed, the complete darkness and silence of his room.

And in that moment, that is what I could see.