Stevens Johnson Syndrome Archive

Another Reason We Travel: I like to move.

I don’t know if it is hormones, onion layers or simply human nature. There is no question that I feel more resolved and more peaceful today than I ever have. And now, even in those crazy moments, I know I can talk myself off ...Read More


Last night I found myself talking on the phone. We had been trying to get ahold of each other for a few days and I was grateful she called. I know her, but not as well as I would like. She is the sister ...Read More

Happy Birthday Kyle!

Happy Birthday Kyle! We love you! Today, on his birthday, I keep trying to write a letter to Kyle. I want it to be profound. I know he knows I love him and that I always have his back. I have held on so ...Read More